Joshy in Big Sky Country chronicles the life and adventures of Joshy, a 17-year-old diagnosed with a rare and terminal neurodegenerative disorder and moderate intellectual disability as he explores his new home state of Montana.
In 2015, Joshy was diagnosed with idiopathic Neurodegeneration with Brain Iron Accumulation (NBIA), a rare, inherited neurological movement disorder characterized by an abnormal accumulation of iron in the brain, which causes progressive degeneration of the nervous system. There is no known cure and no standard course of treatment. Since then, he has had a g-tube placement, a complete spinal fusion to correct a 90-degree lordosis, and had a baclofen pump inserted to decrease spasticity and dystonia. Even though Joshy has lost his ability to walk, his smile never waivers.
Born and raised in Colorado, Joshy and his family are setting on a new course and are moving to Montana to be near family and to spend the rest of his days meeting new people and crossing off adventures from his “Big Sky Bucket List.”
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Be a part of the adventure! Help Joshy check off items from his bucket list by donating below. Donations will be used to offset the cost of gas, admission fees, and other related expenses.
We also offer t-shirts to show your support for Joshy in Big Sky Country. Get yours here.
All links to future posts chronicling Joshy’s adventures in Montana will be posted below.